Diabetes Blog Week, Day 4.
We don’t always realize it, but each one of us had come a long way since diabetes first came into our life. It doesn’t matter if it’s been 5 weeks, 5 years or 50 years, you’ve done something outstanding diabetes-wise. So today let’s share the greatest accomplishment you’ve made in terms of dealing with your (or your loved one’s) diabetes. No accomplishment is too big or too small – think about self-acceptance, something you’ve mastered (pump / exercise / diet / etc.), making a tough care decision (finding a new endo or support group / choosing to use or not use a technology / etc.)
Hmmmmm, good question! I feel like I haven’t mastered anything when it comes to my diabetes care. I mean, I have mastered the motions, testing my sugar when needed, changing my pump sites, bolusing, etc. But I am still, 14 1/2 years in, not 100% confident to say “Yes! I kick ass at diabetes!” My sugars are not perfect, I don’t exercise every day, I still enjoy a carb or 20, and I have days where I’m crying out of frustration that I have to live with this crap for the rest of my life. Sometimes my blood sugar is just a real jerk for no reason (like last night for example – for about 4 hours I was cruising between 43 and 80 despite 20 oz of OJ and two not-so-small spoonfuls of peanut butter). Is there anyone out there who really has mastered diabetes? Who can go to their endo every three months and know that their A1c is going to be 6.0? Who has the perfect attitude when it comes to living with this?
But, the question wasn’t if you’ve mastered diabetes. It’s about diabetes-related accomplishments. Recently I made some pretty darn important care decisions. As the Hubs and I want to have a small human in the next year or two, I knew that the time had come where I need to get serious and get as close as I can to mastering diabetes. I decided to end my months-long pump holiday and resume pump therapy with the help of a CGM. This was something I thought about for
weeks months before finally accepting that I’m going to have to become a cyborg again.
You see, in theory, I love the pump. Don’t have to carry around syringes or pens, your meal schedule can be more varied, and it offers better management for most people than multiple daily injections. Blah, blah, blah.
But in reality, the pump is a pain in the butt. Site changes, being connected all the time, it’s expensive, it beeps at you, it’s bulky and gets in the way, and it makes wearing dresses a headache! My pump-cation had been glorious! However, knowing all of the negatives that come with wearing a pump, I decided the best thing for my health and the health of a future pregnancy would be to get back on the pump and to get a CGM. So the research began.
I googled, I youtubed, I blog-stalked. Wow, there are a lot of people online sharing their experiences with various pumps and CGM setups. The doctors and manufacturer’s’ sites will only tell you so much, these blogs were so helpful in sharing real-world experiences and opinions. I especially found blogs written by women who are in similar life stages as me to be very helpful and was so happy to find their sites (Texting my Pancreas and SixUntilMe especially). With the help of my new blogger buddies and the fabulous interwebs, I decided on the Dexcom G4 Platinum CGM and Animas Ping pump. In black and silver – stylin’.
Change is scary and although I had previously been on the MiniMed Paradigm pump, I was pretty nervous about going back on pump therapy. I had a breakdown one night about the fears of the unknown and how much it sucks that I have to do this and think about these things a year before we even want to start trying for a baby. He, however, reassured me that there are other ways to start a family and if I absolutely did not want to do this, I didn’t have to. He also made the great point that if I hate it, I can quit. He’s so smart.
Fast forward to today and I’m almost 2 weeks into my new cyborg life. Have I mastered it? Nope, not quite. I’m still aware of the pump clipped to my pants and the CGM sensor and transmitter taped to my body. I still feel dorky about my “diabetes tool belt”. My sugars aren’t perfect and I definitely miss the freedom of not being attached. But one thing I have mastered is my attitude that I’m just doing what I have to do. And knowing that diabetes care is something that can be adjusted and modified to fit my needs at the time. Not everyone needs to be on pump therapy. It’s not the best course for every.single.person with a dead pancreas. But for me, right now, it’s the best choice in regards to my goal of becoming a mother, and I’m cool with that. Will it be my choice 5 years from now? Who knows. All we can really do in regards to our care is to make the best decision with the knowledge we have at the time. I think a series of making the right decision and small accomplishments will lead me closer and closer to that whole mastering diabetes thing. But for now, I feel like I’ve accomplished the right attitude.